Let’s begin with the cast of characters:
A mom in the waiting room.
Watching the clock (tick, tick).
One hour is okay. They said one hour.
2 hours is not okay. 2.5 hours is definitely not okay.
Page the doctor again.
Anxiety. She’s in trouble.
Why can’t it be me instead, this is not the natural order of things.
I’m not okay.
 
A dad at work.
Looking normal on the outside.
Going through the motions with machines and metal and tools and oil.
Shoving down emotions.
This is life.
She’ll survive, she’s tough.
I’m not okay.
 
A Doctor in the surgery room.
I explained the procedure.
I told her she’d be fine. No problem.
This is beyond my expertise.
I think of what I would do if it were my mom, my sister on this table.
She’s had too much sedation, she’s been prodded too much.
And I call it.
This situation is not okay.
 
There’s an RN.
I get to hold this hand like it’s my job.
It is my job, to have compassion, to send love and care through this hand.
To comfort and soothe. To joke. But to know this is serious.
When I tell her she’s okay, I mean it.
I’m here, you’ll be okay.
But am I okay?
 
A group of friends spread throughout the world.
Connected by Facebook.
They don’t know, because it hasn’t been shared with them.
So they go about their day, wanting to send love but not yet asked to.
Tomorrow there will be infinite “likes” and words of encouragement.
Today they post selfies and motivational memes.
Some are okay, some are not, but their pictures smile.
 
And a man in a far off land.
That feels a lifetime away.
Normalized in a world of hospitals and needles.
But it’s different when they belong to her.
My heart aches that I am not there.
I want to wrap her up in my arms.
And make sure she knows I’m not a thousand miles away.
That she can lean on me even though I’m not okay.
 
Freeze.
Camera zooms in on me:
Lying on the hospital bed
It’s cold in my thin open nightgown
They put warm blankets all around me
The RN holds my hand
The Doctor moves into my jugular vein
My mom is in the waiting room with 20 strangers holding her breath
My dad is dissociated with a wrench at work
My friends create their day in the world
And he holds someone else’s hand in a different hospital
And I wonder, is everyone else okay?
 
Fentanyl
The world goes fuzzy black
I feel pressure on my neck
Time looses meaning
 
Who I was: Glitter toenail polish fading from a month ago in Vegas as I relived my showgirl days
Who I am: Humbled on a cold hospital bed
On the outside: Vitality and beauty
On the inside: Twisted uncooperative veins, weak blood damaged by disease
Outside potential: Relationship, speaking, MedX at Stanford
Inside potential: Internal bleeding, possibilities of eventual transplant
So much potential all around that doesn’t matter in this moment
A steady beep, beep, beep is what counts right now
External projection: She has her shit together, I want to be her
Internal projection: She’s a mess, I feel sorry for her
 
And…. Action!
The silent incongruence that lives between glitter toenail polish and a hospital bed
 
Stay tuned for next week, where we lather, rinse, and repeat… all the while hoping for a different outcome.

Any experiences resonate? Comment below! 

I look at my iCal calendar on my computer, all organized in bright vibrant color-coded blocks of time from 5:30a to 10p each day, to-dos at the top of each day at least 10 long and I choke on my inhale. Slow down. Breathe. Have patience.
 
But I should know better.
 
A few weeks ago I was doing better. I had days, whole days, that had nothing written on them… well actually, maybe one day. And, well, really that was in December. No, wait, in February I had 3 days off! Good job. Okay, well actually it was because I got the flu and couldn’t go to the 3 day training I was supposed to be at. I remember feeling so relieved I had a 102 degree fever so that I could take those days off to be at home. What’s wrong with this picture? 
 
I am exhausted. My liver aches. One thing gets added to my schedule unexpectedly and I feel overwhelmed, like I’m going to throw up, like I want to hide forever from the world and let go of all responsibilities. But I can’t, I’m committed,.  I did this to myself. 
 
My alarm clock goes off at 4:30am again.
 
I’m making myself sick by being busy. Being busy is my addiction.
 
And right now I’m relapsing. I’m consciously watching myself do my addiction, feeling powerless to stop it. Like I’m a victim of my calendar and all the things I have said “yes” to. Feeling like I need to do all these things in order to cope with what’s going on in my personal life, to cope with not wanting to feel. I’m too busy to have time to feel. How convenient.
 
And the world says: you’re amazing that you can do all of that, it’s inspiring. And I’m justified. Validated. Empowered. To keep doing my addiction. To "get shit done." To use my calendar to avoid living my life.
 
And then I’m fatigued. I’m exhausted. My abdomen aches.
 
You know better. This is how you got sick in the first place. Change your lifestyle. You have to.  And I judge myself. And my alarm goes off at 4:30a again.
 
STOP.  Just stop... Slow down sweet girl. You pace is dizzying, running around in a circle. Listen deep within. Grown up Zina has you now, and is rocking you. It’s okay. Just feel. Feel your precious heart and this moment of life that will not come back again. Who do you want to be when you grow up into this moment? Who do you want to be with? How does that time look, feel, and taste? Don’t miss your life.
 
Sometimes we relapse on our own toxic behavior. Even when we know our lives and health depend on us staying sober. And we suffer as we watch ourselves. And it’s okay… hand on heart, breath in belly. I caught myself sooner this time. I see my pain and frustration. I’m going to be okay, and I’m moving in the right direction.
 
I look at my calendar, start taking out blocks of color, make a few phone calls, sigh into the blank spaces. Alarm goes off at 7a.
 
I can choose to be busy, but less busy, and be aware and awake. I can have self-compassion. I can feel a little. I can be in community. I can do the counter-cultural thing. I can say yes, but also no. I can change. I can honor my health.
 
Does any of this feel true for you? Comment below:

I reach into my purse and pull out a piece of paper. It’s a remnant from my doctor’s appointment yesterday, my most recent check-up.  White, crisp, data. Simple numbers distributed on a page in an orderly fashion.  It is so clear to me that these numbers and letters don’t possess feelings. My name is at the top, my birthdate, my age: 34 years. 34 years. I feel like I’ve lived several lifetimes in these years. In the last five alone. It’s dizzying. I notice sorrow creep into my belly. I sigh.
 
It’s just a piece of inked paper, but for me it is a constellation of cycles of diagnosis and recovery. What’s in a diagnosis? How is a diagnosis acted upon by time? Five years of time.
 
It’s about to be solstice. The day with the least amount of sunlight, and most darkness. I’ve allowed in both the darkness and the light, because it’s all true.  To try to deny any part would be futile. I believe it’s all part of me, stardust, the Universe, trying to experience itself in this unique embodied form, in this lifetime, in this human body.  This seemingly broken body that I’ve painstakingly put back together again, one tear and laugh at a time.  The white paper says: today’s clinical visit summary.
 
It’s about to be the new year. New Year. As if things change in a day… I guess sometimes they do. On New Years five years ago I was flying to India, intuitively knowing I had to go to shift my life.  I was seeking and finding no answers here. So what do privileged people from Boulder do when that happens? Go to India. Go somewhere else to find yourself, to find the part of yourself you already know to be true, but you’re terrified about accepting, so you give yourself a glamorous and culturally-appropriated intervention.  Thus, I went to India, because I had an intuitive hit from my future self that I needed help to shift.  And I sat in temples and meditated and frivolously stated that I was open to whatever help I would receive.  “I’m open.” Just help.  Guess I should have been more specific.  I started feeling ill two weeks later on the flight home. The white paper says: trip to India is seemingly unrelated.
 
Now, it’s about to be my birthday. 35. I’m a crone. I’m not trying to be funny here, archetypically I feel like a crone. Metaphorically, I’ve spent the last five years contracted in Winter, and am just now crawling out to feel the rays of sunshine pierce my inner seed. I’ve been under a blanket of snow while my purpose has been working on me.  On the outside it looks like I’ve been sparkling, like I’m the model patient, like I’ve triumphed over incredible illness.  True.  In my past life as an actress I painted on the face, as a patient I added the smile.  Underneath the surface I went from professional seeker of the silver lining to professional griever.  I’ve grieved, and grieved, and grieved. I’ve lost, and let go: of my past that I didn’t want, of my past that I didn’t get, of my future that can’t be my future anymore, of my future that will be but I’m scared to own. The white paper says: next check-up in 3 months.
 
So on this upcoming birthday, as with every birthday, I will have gratitude to be taking another breath, because it is precious.  And I will have fear, as with every birthday, of what I will become in this year. Both the potential for another shattering, and the potential for stepping more fully into my expansion. I feel exhausted by the freedom of choice and responsibility that comes with being authentically human.  And my specific version of human- to burn brightly but not burn out.  More accurately, to not burn out again.  So what will I become this year as I continue to step into my purpose?  
 
Let’s not forget this piece of paper with scattered data in my hand.  This paper tells the tale. Of diagnosis, of feeling fragmented, of it not being fair, of slow improvement yet continual destruction over time.  It says Autoimmune Hepatitis, Pancytopenia, enlarged spleen.  It says to: continue Prograf.  I feel my doctor’s thoughts pour through the page as he typed the numbers: “you haven’t let your liver disease define you. That’s as rare as your disorder.” The prescription he stapled to the back for a new blood test to see the level of my liver damage. The word “cirrhosis” bleeds from the page and takes flight in the air, and my liver increases its weight in my abdomen. 
 
In the unspoken white of this paper are five years of heartache, pain, not being seen, acceptance, grasping, identity, new identity, discovery, joy.  Of who am I? But I don’t want to be that: sick.  But I don’t know how to be that: healthy.  And who am I now?  Of solstices, and New Years, and birthdays.  Of that which dies away and creates new space.  Of slowing down, feeling the anxious beating of my heart in my chest at night, because I don’t have time to waste, I could die at any moment. And then there’s another breath. Follow it.
 
I wonder, how does the seed know about gravity, of how to find the sun, of which way is up?  Where to put down roots and where to grow?  Where to hold true and where to expand? 
 
And I wonder, how do I write about this experience, own my experience, and continue to live my experience in a way that can inspire others who are in their own crisis?
 
I don’t know.  I guess I just continue to be.
 
So I neatly fold the prescription and the piece of paper, and place it delicately in my purse, with reverence, because it holds the last five years of my history. And I find my hand on my heart sensing for my next breath.  My cells, my family, my liver, my relationships, the earth beneath my feet, the stars over my head, the seed of my purpose, it all holds my history.   

Does this feel true for you? Like/comment below ~