Noun.

• Marrow- the fatty network of connective tissue that fills the cavities of bones
• Marrow- the most essential or most vital part of some idea or experience

 
Bone marrow biopsy
Bore out my vitality in a thread
Cherry red on the petri dish
The pain is excruciating
I don’t want you to see my most essential part
Taking a microscope to look at my essence
 
One more “first”
Anticipation of pain
A needle to my center
Owwww!
Sucks the heart
Leaves an absence
Deep aching left in the wake
 
It is a violation.
Perhaps the cavities of my bones will reveal
my pith to be altered
Maybe you will see
That I’m not at my core who you think I am
All pretenses and projections will be blown
 
The truth will be revealed
Perhaps it will be a relief, I don’t have to act any longer
You’ll see I’m broken, less-than, deformed, mutated, or otherwise not normal
And I’ll have to stop pretending.
Perhaps it will be my next greatest challenge, and I’ll have to show up even more
You’ll see I’m clear, resilient, scaffolded, filled with super-cells ready for action
And I’ll have to stop pretending.
 
Relief has many forms.
The line between positive and negative degrades to truth
This is more complex than results on paper
Because it is comprised of experience
 
The results will mean nothing/everything
They tell me and everyone else who I am
Yet say nothing about my hopes, desires, and capacity to love.
A life lived anchored in marrow.
 
I often wonder if I am strong enough for what I want to accomplish in this life
And now some of that strength will be removed
And then it will grow back fiercer
With renewed vigor
Intensely recommitted to being vital
To living out it’s impact and purpose
Perhaps I should say thank you
Thank you for removing a burdened cross-section
So that resolved vitality can replace it
 
 
With one more part of me removed… who am I now? 

Let’s face it, unless we’re in complete remission/recovery forever and not in a relationship at all, we’re probably going to be going through some sort of set-back/relapse/diagnosis process at some point while also being in a relationship. 
 
And it’s hard. 
 
In my experience my illness/diagnosis bonded us, but also took a toll on my relationship,. When I was diagnosed I had periods of feeling closer in my relationship: like we were a team, like we were beating this together, like if we can make it through this, we can make it through anything. It was the experience of bonding through trauma. 
 
And then came the moments where I felt anger, resentment, shame:
No, I’m not healthy yet (will I ever be healthy?). Stop expecting me to be on a different timeline than I am. I don’t know how long it’s going to take to be normal.
No, I still don’t want to have sex. I don’t know if I ever will.
You know what, you don’t even get me anymore. This relationship is broken.
 
I’m a different person now then when we met.  
 
We all do the best that we can.  Maybe we grow closer together, and maybe we grow farther apart, and there’s also a  whole realm of combo deals out there as well.  There are as many scenarios as there are facets to relationship. 
 
Main point: when things happen to us personally the person we’re in a relationship with takes the most direct hit. Diagnosis in not fair to anyone in the relationship.
 
We want to protect each other from the pain we’re in, from the fear of our own and each other’s mortality, from the reality of the truth. So we stay quiet. As much as this is a noble cause we also miss out on support, and being seen in our pain.   
 
So if you want to be in a real-ationship, my encouragement is to keep communicating.  The harder it gets to be honest about the pain you’re in: be brave and share it.  It’s only going to be worse if you’re holding it in and not sharing, and both people feel isolated and unseen in the relationship.  Hard things, are, well, they’re hard to share. Sometimes impossible. But we have to take each other along on the journey if we want to stay together and grow. If we want a real-ationship. 
 
So what would happen if the things that you think you can’t share about your medical experience, you actually chose to share? 
 
And what would happen if at the same time you could trust your partner to let you know when they need a break from talking about it, and that you’ll come back to it, but you don’t take it personally?
 
This gives everyone an opportunity to be with each other in a crisis when we need each other the most, with enough space to deal with their own issues.  That’s part of one definition of compassion: having all the love in the world, but with a little bit of space. 
 
Everyone gets to be responsible for their own experience, and also be deeply loved. We get both autonomy and support. We get to rock each other to sleep.
 
But, here’s the trick: it’s a practice, and it can feel hard, scary, and vulnerable… but at the end of the day do you want to be in a real-ationship or not? 
 
If so, get brave, and get sharing.   

Does this seem true for you? Comment below:

I reach into my purse and pull out a piece of paper. It’s a remnant from my doctor’s appointment yesterday, my most recent check-up.  White, crisp, data. Simple numbers distributed on a page in an orderly fashion.  It is so clear to me that these numbers and letters don’t possess feelings. My name is at the top, my birthdate, my age: 34 years. 34 years. I feel like I’ve lived several lifetimes in these years. In the last five alone. It’s dizzying. I notice sorrow creep into my belly. I sigh.
 
It’s just a piece of inked paper, but for me it is a constellation of cycles of diagnosis and recovery. What’s in a diagnosis? How is a diagnosis acted upon by time? Five years of time.
 
It’s about to be solstice. The day with the least amount of sunlight, and most darkness. I’ve allowed in both the darkness and the light, because it’s all true.  To try to deny any part would be futile. I believe it’s all part of me, stardust, the Universe, trying to experience itself in this unique embodied form, in this lifetime, in this human body.  This seemingly broken body that I’ve painstakingly put back together again, one tear and laugh at a time.  The white paper says: today’s clinical visit summary.
 
It’s about to be the new year. New Year. As if things change in a day… I guess sometimes they do. On New Years five years ago I was flying to India, intuitively knowing I had to go to shift my life.  I was seeking and finding no answers here. So what do privileged people from Boulder do when that happens? Go to India. Go somewhere else to find yourself, to find the part of yourself you already know to be true, but you’re terrified about accepting, so you give yourself a glamorous and culturally-appropriated intervention.  Thus, I went to India, because I had an intuitive hit from my future self that I needed help to shift.  And I sat in temples and meditated and frivolously stated that I was open to whatever help I would receive.  “I’m open.” Just help.  Guess I should have been more specific.  I started feeling ill two weeks later on the flight home. The white paper says: trip to India is seemingly unrelated.
 
Now, it’s about to be my birthday. 35. I’m a crone. I’m not trying to be funny here, archetypically I feel like a crone. Metaphorically, I’ve spent the last five years contracted in Winter, and am just now crawling out to feel the rays of sunshine pierce my inner seed. I’ve been under a blanket of snow while my purpose has been working on me.  On the outside it looks like I’ve been sparkling, like I’m the model patient, like I’ve triumphed over incredible illness.  True.  In my past life as an actress I painted on the face, as a patient I added the smile.  Underneath the surface I went from professional seeker of the silver lining to professional griever.  I’ve grieved, and grieved, and grieved. I’ve lost, and let go: of my past that I didn’t want, of my past that I didn’t get, of my future that can’t be my future anymore, of my future that will be but I’m scared to own. The white paper says: next check-up in 3 months.
 
So on this upcoming birthday, as with every birthday, I will have gratitude to be taking another breath, because it is precious.  And I will have fear, as with every birthday, of what I will become in this year. Both the potential for another shattering, and the potential for stepping more fully into my expansion. I feel exhausted by the freedom of choice and responsibility that comes with being authentically human.  And my specific version of human- to burn brightly but not burn out.  More accurately, to not burn out again.  So what will I become this year as I continue to step into my purpose?  
 
Let’s not forget this piece of paper with scattered data in my hand.  This paper tells the tale. Of diagnosis, of feeling fragmented, of it not being fair, of slow improvement yet continual destruction over time.  It says Autoimmune Hepatitis, Pancytopenia, enlarged spleen.  It says to: continue Prograf.  I feel my doctor’s thoughts pour through the page as he typed the numbers: “you haven’t let your liver disease define you. That’s as rare as your disorder.” The prescription he stapled to the back for a new blood test to see the level of my liver damage. The word “cirrhosis” bleeds from the page and takes flight in the air, and my liver increases its weight in my abdomen. 
 
In the unspoken white of this paper are five years of heartache, pain, not being seen, acceptance, grasping, identity, new identity, discovery, joy.  Of who am I? But I don’t want to be that: sick.  But I don’t know how to be that: healthy.  And who am I now?  Of solstices, and New Years, and birthdays.  Of that which dies away and creates new space.  Of slowing down, feeling the anxious beating of my heart in my chest at night, because I don’t have time to waste, I could die at any moment. And then there’s another breath. Follow it.
 
I wonder, how does the seed know about gravity, of how to find the sun, of which way is up?  Where to put down roots and where to grow?  Where to hold true and where to expand? 
 
And I wonder, how do I write about this experience, own my experience, and continue to live my experience in a way that can inspire others who are in their own crisis?
 
I don’t know.  I guess I just continue to be.
 
So I neatly fold the prescription and the piece of paper, and place it delicately in my purse, with reverence, because it holds the last five years of my history. And I find my hand on my heart sensing for my next breath.  My cells, my family, my liver, my relationships, the earth beneath my feet, the stars over my head, the seed of my purpose, it all holds my history.   

Does this feel true for you? Like/comment below ~